I am looking for to you posting a link. I can't wait to see it. Haven's interview will air this Thursday, Nov. 17 on ABC channel 11 WTVD during the 4:00 broadcast, if you have an opportunity to watch. I am assuming that the segment will be quite short, but hopefully informative. If you have any friends in the NC area, let them know. Thanks for having educated me so much on Narcolepsy and Cataplexy. Much love and Happy Thanksgiving!!!
The segment just aired - you did a great job!!!! Thousands and thousands of people just saw this and now have an understanding of what narcolepsy is all because of YOU!!! I think NBC News 4 did a nice job setting the stage for you and that you did a great job explaining what you've gone through. And, as an added plus, you looked beautiful! Of course you always do, but you never know how its going to turn out on camera. :)
Thanks for getting out there and doing this on behalf of everyone with narcolepsy!
Julie, I just watched the segment online. What a great educational piece! You are such an inspiration and representative for those with sleep disorders.
I am a 28 year old female, diagnosed with narcolepsy and cataplexy four years ago while in law school.
Narcolepsy has changed my life for better and worse. I am proud to be a person with narcolepsy, yet hope to build a brighter future for this serious chronic illness.
On April 19th, 2010, I ran the Boston Marathon for Wake Up Narcolepsy to raise awareness and funds towards finding a cure for narcolepsy. On this blog, I will share some of my experiences as a person with narcolepsy, and as a runner, yogi, and photographer. In doing so, I hope to shed some light on narcolepsy, a little known and often misunderstood disorder.
Thanks for stopping by!
I am looking for to you posting a link. I can't wait to see it. Haven's interview will air this Thursday, Nov. 17 on ABC channel 11 WTVD during the 4:00 broadcast, if you have an opportunity to watch. I am assuming that the segment will be quite short, but hopefully informative. If you have any friends in the NC area, let them know. Thanks for having educated me so much on Narcolepsy and Cataplexy. Much love and Happy Thanksgiving!!!
ReplyDeleteJulie, you continue to inspire me! Can't wait to watch your video.....it will be from your link though...I'm in MA.
ReplyDeleteHi Julie,
ReplyDeleteThe segment just aired - you did a great job!!!! Thousands and thousands of people just saw this and now have an understanding of what narcolepsy is all because of YOU!!! I think NBC News 4 did a nice job setting the stage for you and that you did a great job explaining what you've gone through. And, as an added plus, you looked beautiful! Of course you always do, but you never know how its going to turn out on camera. :)
Thanks for getting out there and doing this on behalf of everyone with narcolepsy!
Kerry
Julie,
ReplyDeleteI just watched the segment online. What a great educational piece! You are such an inspiration and representative for those with sleep disorders.
Mary Ann