About Me
- REM Runner
- I am a 28 year old female, diagnosed with narcolepsy and cataplexy four years ago while in law school. Narcolepsy has changed my life for better and worse. I am proud to be a person with narcolepsy, yet hope to build a brighter future for this serious chronic illness. On April 19th, 2010, I ran the Boston Marathon for Wake Up Narcolepsy to raise awareness and funds towards finding a cure for narcolepsy. On this blog, I will share some of my experiences as a person with narcolepsy, and as a runner, yogi, and photographer. In doing so, I hope to shed some light on narcolepsy, a little known and often misunderstood disorder. Thanks for stopping by!
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PUBLIC AWARENESS AWARD
Thank you, Narcolepsy Network for this incredible honor!
Featured Author in:
Holiday Dream Issue 2011
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Sleep Walk 2012
Saturday March 10, 2012
My Website:
www.julieflygare.com
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Copyright FOX So You Think You Can Dance is my favorite television show. I was surprised to learn that one of this season's contestant... -
Grab the popcorn and TV remote! This Tuesday, October 18th 2011, MTV airs True Life: I Have Narcolepsy at 8pm (EST). The show follows the d... -
When my father passed unexpectedly on Tuesday, I was dancing. I was swirling, whirling and laughing with joy. My dad was at work at the P... -
Mother Diantha with daughters Haven and Seanna On the last day of school, when a 4th grader passed a hat around the classroom, no one bli... -
I am thrilled that this month's Marie Claire magazine (October 2011 with Reese Witherspoon on the cover) features a two-page health articl... -
I turned on my TV and cataplexy starred back at me. I smiled. The program information for MTV's True Life "I Have Narcolepsy" described:... -
The U.S. Supreme Court will take on a case to decide whether a Lutheran Elementary School can be sued for possibly violating the Americans w... -
“One hour of life, crowded to the full with glorious action, and filled with noble risks, is worth whole years of those mean observances of... -
The stage was set for a perfect Valentine's Day. Walking into my boyfriend Ben's house, I saw flowers and gifts beautifully displayed on th... -
What do people with insomnia and people with narcolepsy have in common? Trick question! I don't know, but we may be coming closer to an answ...
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Wake Up Narcolepsy
Blog Archive
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2011
(68)
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November
(12)
- SAY IT LOUD: I'm a Person with Narcolepsy and I'm ...
- THE KING OF BLING: REM Runner's Thanksgiving-Inspi...
- When Motivation Isn't For Sale (Part II)
- When Motivation Doesn't Grow On Trees (Part I)
- ABC WTVD Reports on Narcolepsy and AVALON Magazine...
- Narcolepsy in the News
- NBC Washington Features Julie Flygare in Narcoleps...
- NBC News4 Airs Segment about Juile Flygare & Narco...
- Taking Risks & Discovering Nia
- Forget the Birds and the Bees, It's Time to Talk a...
- Full Episode of MTV True Life I Have Narcolespy Av...
- MTV True Life I Have Narcolepsy Airs Saturday Nov ...
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October
(13)
- Welcome to the World's Sleepiest Pumpkin Patch
- REM Runner's Spooktacular Pumpkin Hunt 2011
- NBC Interviews REM Runner Julie Flygare On Narcole...
- REM Runner, Julie Flygare, Talks About Memoir In O...
- Calling All Creative Cats and Sleepy Pumpkins
- Review: MTV True Life I Have Narcolepsy Shines Bri...
- REM Runner Julie Flygare Receives National Public ...
- Narcolepsy Network Celebrates 25th Annual Conferen...
- MTV True Life "I Have Narcolepsy" Premieres Tuesda...
- Wake Up Narcolepsy Swings Big for Research
- REM Runner Visits U.S. Supreme Court for Case invo...
- Music City Raises the Volume on Narcolepsy Awarene...
- Marie Claire Narcolepsy Article Featuring Julie Fl...
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November
(12)
Sleepy in Greater DC?
Awaken The Cure
Supporting Narcolepsy Research & Awareness
Labels
- ADA (1)
- Advocacy (15)
- art (4)
- Blog (1)
- Boston Marathon (11)
- Boston Marathon 2011 (2)
- Cataplexy (13)
- CDC (2)
- Children with Narcolepsy (5)
- creativity (2)
- Diagnosis (3)
- Dr. Mignot (5)
- Excessive Daytime Sleepiness (6)
- Finding a Cure (5)
- Getting In Shape (13)
- Guest Blogger (1)
- How to blog (1)
- Hypnagogic Hallucinations (3)
- hypocretin (1)
- Inspirational Quotes (5)
- Law School (3)
- Long Run (9)
- Medication (5)
- Meditation (6)
- Memoir (3)
- MTV True Life I Have Narcolepsy (6)
- Narcolepsy (13)
- narcolepsy art (3)
- Narcolepsy at Work (2)
- Narcolepsy Network (7)
- Narcolepsy Network National Conference (1)
- Narcolepsy Research (11)
- National Sleep Foundation (4)
- News/Media (13)
- Nia (3)
- NIH (1)
- orexin (1)
- Photography (8)
- Pilates (1)
- Raising Awareness (30)
- Science of Narcolepsy (11)
- Sleep Apnea (1)
- Sleep Disorder Research Advisory Board (1)
- Sleep Paralysis (2)
- Sleep Walk 2011 (4)
- Staying Hydrated (2)
- Stretching (11)
- Tendonitis (9)
- Tight Muscles (6)
- Tranquil Space (12)
- U.S. Supreme Court (1)
- videos (7)
- vivid dreams (2)
- Wake Up Narcolepsy (15)
- Wake Up Narcolepsy Golf Outing (2)
- Wake Up Nashville (2)
- Washington DC (18)
- Winter Running (3)
- Yoga (14)
Check Out: A Race with Sleep
"Julie Flygare is Training for the Boston Marathon and dealing with Narcolepsy," in the Boston Globe, by Elizabeth Cooney, March 29th, 2010.
Check Out: Brown Alumni Magazine
"Alumna Runs in Boston Marathon To Raise Narcolepsy Awareness"
Check out: RemRunner In the News!
"Narcolepsy research triggers myriad brain studies" by Carolyn Johnson in the Boston Globe Nov. 30, 2009.
Check out: Middlesex School's Alumni Spotlight
"Julie Flygare ’01 Runs to Wake Up Narcolepsy"
Check Out My Marathon Fundraising Page
Click here to learn more about Wake Up Narcolepsy and support our marathon efforts!
Like my writing?
Check out my Sculpture Blog
Narcolepsy in the News:
- Study: Fight afternoon slump with protein, not sugar rush
- Sleep Review: Narcolepsy Drugs Could Reverse Illness-induced Lethargy
- New York Times: A Surge of Sleepiness in China Appears to Have Been Caused by Flu
- TIME: The Curious Link Between H1N1 Flu and Narcolepsy
- Stanford School of Medicine: Study draws connection between narcolepsy and influenza
Other Blogs/Sites of Interest:
- DayDreamer
- Everything Narcolepsy
- Narcolepsy Awareness by Brent Allen Caputo
- RKMLAI Journal
- Narcaplexy
- Manic Ramblings of Marcianna
- Planet Narcolepsy
- I'm The Dreamer
- Making Narcolepsy Look Good;
- Narcoleptic Mama
- DSPS, a sleep disorder
- Narcoleptic Knights
- Queen of Sleep
- N is for Narcolepsy
- Confessions of a Narcoleptic
- Coping With Narcolepsy
- Knitting with Narcolepsy
- Nicole Jeray's Blog (LPGA Golfer with Narcolepsy)
Check out: Julie Flygare Photography
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Marathon Training Log
- 4/19/10 - 26.2 miles Running in 4 hours, 41 minutes and 16 seconds!!
- 4/17/10 - 1.5 miles Running
- 4/14/10 - 3 miles Running
- 4/11/10 - 4 miles Running
- 4/8/10 - 4 miles Running
- 4/6/10 - 6.5 miles Running
- 4/4/10 - 3 miles Run/Walking
- 4/2/10 - 2.5 miles Run/Walking
- 3/31/10 - 3 miles Run/Walking
- 3/30/10 - 4 miles Run/Walking
- 3/28/10 - 2.5 miles Run/Walking
- 3/26/10 - 3 miles Run/Walking
- 3/23/10 - 3.5 miles Run/Walking
- 3/18/10 - 2.5 miles Run/Walking
- 3/15/10 - 2.5 miles Run/Walking
- 3/12/10 - 2.5 miles Run/Walking
- 3/10/10 - 3 miles Biking
- 3/8/10 - 2 miles Run/Walking
- 2/25/10 - 5 miles Running
- 2/23/10 - 3 miles Running
- 2/21/10 - 3 miles Running
- 2/17/10 - 18 miles Running
- 2/15/10 - 3 miles Running
- 2/12/10 - 3 miles Running
- 2/9/10 - 6 miles Running
- 2/7/10 - 3 miles Running
- 2/5/10 - 3 miles Running
- 2/2/10 - 16 miles Running
- 1/31/10 - 3.5 miles Running
- 1/28/10 - 3 miles Running
- 1/26/10 - 6 miles Running
- 1/24/10 - 3 miles Running
- 1/22/10 - 3 miles Running
- 1/19/10 - 15 miles Running
- 1/16/10 - 3 miles Running
- 1/14/10 - 3 miles Running
- 1/12/10 - 4 miles Running
- 1/9/10 - 3 miles Running
- 1/6/10 - 3.5 miles Running
- 1/5/10 - Yin Yoga
- 1/4/10 - 14 miles Running
- 1/2/10 - 3 miles Running
- 12/30/09 - 5 miles Running
- 12/27/09 - 3 miles Running
- 12/25/09 - 3 miles Running
- 12/23/09 - 12 miles Running
- 12/21/09 - 3 miles Running
- 12/17/09 - 3 miles Running
- 12/15/09 - 3 miles Running
- 12/10/09 - 3 miles Running
- 12/8/09 - 9 miles Running
- 12/6/09 - 3 miles Running
- 12/3/09 - 3 miles Running
- 12/1/09 - Yin Yoga
- 11/29/09 - 3 miles Running
- 11/28/09 - Yin Yoga
- 11/26/09 - 7 miles Running
- 11/24/09 - 3 miles Running
- 11/19/09 - 3 miles Running
- 11/17/09 - 4.5 miles Running
- 11/14/09 - 3 miles Running
- 11/12/09 - 3 miles Running
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