When I tell people I have narcolepsy, I generally get the same response: “So you can fall asleep in the middle of a conversation?”
For the record, I’ve fallen asleep in a lot of strange places but I’m fairly certain I've never fallen asleep in the middle of a conversation. (Correct me if I'm wrong!) However, in all fairness, this is what I thought narcolepsy meant too, before I got it...
So, if narcolepsy isn’t what we think it was, then what is it exactly? Here’s my briefest of brief summary:
Narcolepsy is neurological disorder caused by the brain’s inability to properly regulate the sleep/wake cycle. The two most debilitating symptoms of narcolepsy are excessive daytime sleepiness and cataplexy. A person with narcolepsy experiences episodes of excessive daytime sleepiness comparable to how a normal person would feel after staying awake for 48 to 72 hours straight.
Cataplexy is a form of temporary muscle paralysis completely unique to narcolepsy. Cataplexy varies in intensity; a person with severe cataplexy may collapse to the ground, unable to move or speak for a few seconds to a few minutes.
Society correctly associates narcolepsy with sleepiness, however this sleepiness is generally perceived as harmless or humorous. In reality, narcolepsy is a serious chronic disorder that can severely impact personal and professional lives. Studies indicate that narcolepsy’s affect upon quality-of-life is comparable to epilepsy, multiple sclerosis, and Parkinson’s disease.
For more complete information about narcolepsy, please visit the following websites: Wake Up Narcolepsy, Narcolepsy Network, and Stanford Center for Narcolepsy
Tuesday, November 17, 2009
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Hey Julie!
ReplyDeleteJust stopped by and read through your blog. I applaud your efforts! I think this is really great :) Hope all is well with you since the end of law school/the bar.
Talk soon,
Aliki
Great brief summaries!! I also like the insight that society generally perceives excessive daytime sleepiness as harmless or funny. When it happens to you, it is anything but funny.
ReplyDelete